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Welcome:

 

We are a support group for patients and the families of patients with a Segmental overgrowth in the PIK gene.

 

Our aim is to provide information, advice and support, and to share our own experiences.

So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.

 

DONATE HERE

 

**Our next fundraiser Saturday 29th September**

GoPI3Ks dinner danceGoPI3Ks dinner dance

 

**OUR FUNDRAISERS**

Our first fundraiser this year (2018) will be at:

Burnley Football Club on Saturday 7th April, 10am - 2pm

as part of Pendle Powerfest's car event.

Come along & support us,

we will have CAKES for sale, Pick & Mix for the kids

& big kids alike!

**ALSO ARE YOU UP FOR A CHALLENGE?

Do you fancy winning a £20 dinning out voucher?

Plus runner up prizes of Debenhams & WH Smith vouchers.

THEN COME ALONG & SHOW US YOUR DRIBBLING SKILLS

 

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Our next fundraiser will be at a big car event on Saturday 27th May

at Nelson & Colne College, Scotland Rd, Nelson, lancs, BB9 7UY 10am-3pm

Come along & support us, we will have various activities going on:

A TOMBOLA with prizes including: ALCOHOL, DVDS & MUCH MORE.

A CAR THEMED CAKE SALE

PICK & MIX FOR THE YOUNG & YOUNG AT HEART

 A CHANCE TO WIN A £50 EXPERIENCE DAY VOUCHER BY PICKING

YOUR FAVOURITE CAR, WILL YOURS BE THE WINNING ONE?

A BIG THANK YOU GOES TO: www.ExperienceDays.co.uk FOR THEIR KIND DONATION

OF OUR FIRST PRIZE.

 

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Please see the link below for our first newsletter from 2014:

 GoPI3Ks newsletter December 2014

 

Below is the newsletter from January 2016:

GoPI3Ks newsletter January 2016

 

Below is the newsletter from December 2016:

GoPI3Ks newsletter December 2016

 

Below is the latest newsletter from December 2017

GoPI3Ks newsletter December 2017

 

We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

 

Registered charity no: 1176289