We are a support group for patients and the families of patients with different forms of segmental overgrowth, such as PIK mutation, Proteus Syndrome, CLOVES Syndrome,
Macrocephaly-capillary malformation (M-CM) and
Klippel-Trenauney Syndrome (KTS)
Our aim is to provide information, advice and support, and to share our own experiences.
So please feel free to take a look around our site and if you have any questions then you can contact our chairperson on the contact us page.
Please see the link below for our first newsletter from 2014:
Below is the most recent newsletter from January 2016:
We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.
We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.