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Welcome to GoPI3Ks.

 

We are a support group based in the UK for patients and the families & friends of patients with a Segmental overgrowth in the PIK gene, known as PROS: (PIK3CA Related Overgrowth Spectrum).

 

PROS is an umbrella term used for a number of conditions, please see our Segmental Overgrowth Syndromes section for more details on these.

 

Our aim is to provide information, advice and support, and to share our own experiences. Plus we are now in a position to offer financial grants to those living with PROS, for more information please email us at gopi3ks@yahoo.com

So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.

 

DONATE HERE

 

We had a brilliant year last year with lots of fundraising activities going on, check out our fundraising page for more info.

Its now 2019 we are looking at various things we could do to raise money.

 

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We have some fabulous items that we are going to auction on EBay, from

Madonna to Andy Murray to other tennis greats. Hopefully we will have another Gala Dinner later in the year.

 

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We will be attending the fabulous Trawden Show this year: http://www.trawdenshow.co.uk/visitor-information/ 

Sunday 11th of August, come along & say HI, we will have a stall

with lots of goodies to win & maybe even some more of those yummy homemade cakes that were a great success last year.

 

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Please see the link below for our first newsletter from 2014:

 GoPI3Ks newsletter December 2014

 

Below is the newsletter from January 2016:

GoPI3Ks newsletter January 2016

 

Below is the newsletter from December 2016:

GoPI3Ks newsletter December 2016

 

Below is the latest newsletter from December 2017

GoPI3Ks newsletter December 2017

 

Below is the latest newsletter from December 2018

GoPI3Ks newsletter December 2018

 

We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

 

Registered charity no: 1176289