We are a support group for patients and the families of patients with a Segmental overgrowth in the PIK gene.
Our aim is to provide information, advice and support, and to share our own experiences.
So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.
A big big thank you to my friend Tara and her work colleagues at Aseptics department, Royal Sussex County hospital for buying the GoPI3Ks pin badges. Your donation is really helping to make this dream of becoming a registered charity come true.
Please see the link below for our first newsletter from 2014:
Below is the newsletter from January 2016:
Below is the most recent newsletter from December 2016:
We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.
We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.