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Welcome:

 

We are a support group for patients and the families of patients with a Segmental overgrowth in the PIK gene.

 

Our aim is to provide information, advice and support, and to share our own experiences.

So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.

 

DONATE HERE

 

We had a brilliant year last year with lots of fundraising activities going on, check out our fundraising page for more info.

Its now 2019 we are looking at various things we could do to raise money.

 

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We have some fabulous items that we are going to auction on EBay, from

Madonna to Andy Murray to other tennis greats. Hopefully we will have another Gala Dinner later in the year & who knows what other exciting things are just around the corner, stay tuned here for updates.

 

 

Please see the link below for our first newsletter from 2014:

 GoPI3Ks newsletter December 2014

 

Below is the newsletter from January 2016:

GoPI3Ks newsletter January 2016

 

Below is the newsletter from December 2016:

GoPI3Ks newsletter December 2016

 

Below is the latest newsletter from December 2017

GoPI3Ks newsletter December 2017

 

Below is the latest newsletter from December 2018

GoPI3Ks newsletter December 2018

 

We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

 

Registered charity no: 1176289