Your browser version is outdated. We recommend that you update your browser to the latest version.
Home
 

 

Welcome:

 

We are a support group for patients and the families of patients with a Segmental overgrowth in the PIK gene.

 

Our aim is to provide information, advice and support, and to share our own experiences.

So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.

 

DONATE HERE

 

**CURRENT FUNDRAISING**

We are currently raffling off a meal for 2 at a local (Lancashire) Indian restaurant:

If anyone would like tickets please donate here: https://donorbox.org/gopi3ks 

Please include your name, contact details & meal for 2 in the comment box. THANK YOU.

 

*************************************************

One of our members along with her little daughter who has the PIK3CA mutation are doing 

a sponsored walk in the rain. To donate to little Amelia: https://donorbox.org/gopi3ks

 

Please see the link below for our first newsletter from 2014:

 GoPI3Ks newsletter December 2014

 

Below is the newsletter from January 2016:

GoPI3Ks newsletter January 2016

 

Below is the most recent newsletter from December 2016:

GoPI3Ks newsletter December 2016

 

We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.