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Welcome:

 

We are a support group for patients and the families of patients with a Segmental overgrowth in the PIK gene.

 

Our aim is to provide information, advice and support, and to share our own experiences.

So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.

 

DONATE HERE

 

**CURRENT FUNDRAISING**

We raffled the chance to win an Indian meal for 2 at the Agra (Hapton, Burnley, Lancashire)

The lucky winner was: Elaine, who we hope has a fantastic evening.

 

winning ticketwinning ticket

winning ticketwinning ticket

 A BIG thank you goes to the staff at the Agra for their generosity, we raised a total of £320.

Video of the draw: https://www.facebook.com/mandy.sellars.98/videos/10155930147564319/

Check out their website at:

http://www.agrarestaurant.co.uk/AGRA/Welcome.html 

 

 

 

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One of our members along with her little daughter who has the PIK3CA mutation are doing 

a sponsored walk in the rain. To donate to little Amelia: https://donorbox.org/gopi3ks

 

Please see the link below for our first newsletter from 2014:

 GoPI3Ks newsletter December 2014

 

Below is the newsletter from January 2016:

GoPI3Ks newsletter January 2016

 

Below is the most recent newsletter from December 2016:

GoPI3Ks newsletter December 2016

 

We are now on Twitter: @gopi3ks I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.

 

We are now on Facebook: https://www.facebook.com/groups/Gopi3ks/ I am hoping that here we can interact with each other, share stories and find out about research and current drug trials.