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If you or your family would like to find out more about segmental overgrowth, talk to others living with an overgrowth or share your own experiences, please get in touch:

Mandy Sellars, Chairperson GoPI3Ks

email: gopi3ks@yahoo.com

If you would like to be part of our mailing list then please send me an email with your details. I hope to be to send out newsletters periodically with news about research, patient's updated stories and further news. Thanks Mandy.