How GoPI3Ks have helped those living with a PIK3CA mutation.

Since becoming a registered charity at the end of 2017 we have been able to help with the following:


Our first ever grant was made in 2018 & this was to help one of our members with getting a pair of bespoke trousers made. We were happy to be able to help with this as we know how difficult it can be to find that clothes that fit & those that don’t, to have them professionally tailored to suit can be pretty expensive.


For  more information onour first family weekend, please see our News Letter December 2018



We were also able to help one of our members with purchasing footwear, shoes & socks from the USA as they are unable to get the size they need in the UK to fit their overgrowth.


In February we were contacted by our member Margaret who had been struggling with her old electric wheelchair that wasn’t working well at all. We were happy to be able to supply her with a brand new electric wheelchair, Margaret was happy to for us to share photos of her using her new chair




In March we were able to help a family in America with the cost of their daughters’ dental care, something their insurance wasn’t able to cover.

“My family and I would like to give GOPI3KS a heartfelt “Thank you!” for donating money towards our daughter’s orthodontic bill. With your help, we are thrilled to announce, that her bill will be paid in full by this time next month! This is a huge weight off our shoulders! It really means a lot to us. Thank you so much!”



  • In May we had the pleasure of being able to help one of our families who had recently bought a dog.

  • Pugsley is to become an assistance dog to help their daughter who lives with PROS.

  • Initially we were able to help with the vaccinations for Pugsley before he started out on his training to become a therapy dog.




  • In June we were also able to help Pugsley with the start of his training to become a therapy / assistance dog to help one of our young GoPI3Ks members.

  • Here is Pugsley as he starts his training to become helpful to his little human owner.


In August we were able to help one of our members who needed to purchase two pairs of trousers from America that are bigger in size.

Subsequently we were then able to help with the payment to alter the 2 pairs to be made in to one pair of trousers to accommodate the overgrowth in his low limbs.

jeans, pants, style
car, parking, transportation


  • In August one of our younger members underwent an operation, but due to Covid-19 the family were only allowed to travel by car to the hospital.

  • This meant facing the cost of parking as well as congestion charges. GoPI3Ks was able to help with these.

In October we were contacted by Meggie’s mum as Meg had recently undergone an operation on her leg. This meant a long road of recovery ahead of her with no guarantee she would still be able to dance.
GoPI3Ks were able to help by paying for specialised physio & so far Meg is definitely on the road to making a full recovery.
We asked Meggie why she loves dancing so much:
“I love dancing because you can express yourself in a way that everyone will understand without using any words. I can lose myself and just enjoy the feeling of freedom. All your problems go away, it’s just you and dancing”.