Welcome to GoPI3Ks

We are a registered charity (1176289) based in the UK for patients and the families & friends of patients with a Segmental overgrowth in the PIK gene, known as PROS: (PIK3CA Related Overgrowth Spectrum).

PROS is an umbrella term used for a number of conditions, please  click on our learn more button for more information on Segmental Overgrowth Syndromes.

Our aim is to provide information, to offer support to PROS patients and their family and friends as well as to share experiences. Plus we are now in a position to offer financial grants to those living with PROS, for more information please email us at gopi3ks@yahoo.com


On Monday May 27th the GoPI3Ks attended Darwen Live at Darwen Library Theatre to raise awareness & funds thanks to my amazing friend Rachel Toner. Check out the links above.


Throughout the year we will have some fabulous items that we are going to auction on EBay, from pop and sport stars memorabilia


We will be attending the fabulous Trawden Show this year: http://www.trawdenshow.co.uk/visitor-information/ 

Taking place on Sunday 11th of August, come along & say HI, we will have a stall with lots of varied prizes to be won.  We will also be offering homemade cakes to purchase on the day.

Please see the link below for our first newsletter from 2014:

 newsletter December 2014 Issue 1_vp_2

Below is the newsletter from January 2016:

January 2016 Issue 2 – Copy

Below is the newsletter from December 2016:

December 2016 newsletter

Below is the latest newsletter from December 2017

gopi3ks newsletter 2017

Below is the latest newsletter from December 2018

GoPI3Ks newsletter December 2018