Voices of the PROS community

For the past couple of years on Rare Disease Day we have asked the PROS community various questions about their life living with or caring for someone with PROS

2023: Are there any positives from living with PROS?

2023: Are there any negatives from living with PROS?

2024: What is one piece of advice you’d give to your younger self growing up with PROS?

2024: What is one piece of advice you’d yourself when becomming a parent of a child with PROS?

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