Voices of the PROS community
For the past couple of years on Rare Disease Day we have asked the PROS community various questions about their life living with or caring for someone with PROS
2023: Are there any positives from living with PROS?
2023: Are there any negatives from living with PROS?
2024: What is one piece of advice you’d give to your younger self growing up with PROS?
2024: What is one piece of advice you’d yourself when becomming a parent of a child with PROS?
2025: What was your first thought/s when you were diagnosed with PROS?
2025: What is your thought/s now living with PROS?
2025: What was your first thought/s when your child was diagnosed with PROS?
2025: What is your thought/s now of being a parent to a child living with PROS?
