Fundraising

Here you’ll find information on the fundraising that has helped GoPI3Ks achieve their goals to help others. If anyone would like to fundraise for us, that would be wonderful. Please get in touch with us at: gopi3ks email address

A HUGE THANK YOU

to Joan Oliver for spending time organising a raffle &  managing to raise £235 for GoPI3Ks

A BIG THANK YOU Goes to Mr & Mrs Reid, the family of Mandy Powell (a GoPI3Ks member) who instead of asking for presents for the big 80, people donated raffle prizes & the money was given to GoPI3Ks

2019

In February 2019 I (Mandy) decided to run a fundraiser for my birthday. So instead of receiving gifts, I raffled two £20 Vue cinema vouchers & asked people to donate to GoPI3Ks the charity. This was done via social media & word of mouth.  A fabulous  amount of £720 was raised & 2 happy people enjoyed their cinema visit.

Also in February we recieved an extremely generous donation of £450 from Sue Rowlands

In May I was lucky enough to be invited by my friend Rachel Toner who runs P.R Music Tuition to attend the Darwen Live music festival. Here her students spent an afternoon performing various songs. I was able to have the chance to address the audience to tell them about PROS & GoPI3Ks, also to be able to hand out GoPI3Ks leaflets. We were also able to raise a wonderful £136.11 for GoPI3Ks

In May we ran an online auction to sell some items that had been kindly donated from one of Madonna’s tours. We had a tour hoodie & a tour cap. We raised £51.99 for these two items.

Following a grant application to St James’ Place (thanks to Kerry Hockaday for the introduction) GoPI3Ks were given a grant for £1,000.Here is Kerry & Amelia with our  cheque.

An online auction in July raised £122 by auctioning two kindly donated tennis items. We had an official Wimbledon program signed by such tennis stars as Federer, Novak, Venus Williams & more. We also had a t-shirt signed by Andy Murray from his appearance at the SSE in Glasgow.

2020

  • I ran an online birthday fundraiser to raise money for GoPI3Ks.

  • Every person that donated was placed in to a raffle to win one of the following items: restaurant voucher or cinema voucher

  • This year we raised OVER £1,000

One of our supporters Jet was very kind to hold a birthday fundraiser Online raising the fab total of: £111

My friend Kerry decided to raise money for GoPI3Ks for her birthday and raised a fab £90 for GoPI3Ks

Donations from some generous people who recommended GoPI3Ks through Charitable programs on PayPal, eBay, GoFundMe, Facebook, Humble Bundle etc raised a total of:  £95

On FRIDAY 4th DECEMBER just before the I’m a Celebrity final, my friend Kerry decided she wanted to raise money for GoPI3Ks. So Kerry’s sponsored Bush Tucker Trial was born.

With her target’s set, how much would people pay to see her eat an array of dried bugs & yummy dishes:

  • £50 raised saw her chomping on MEALWORMS!
  • £100 raised & next came the CHILLI!
  • £150 raised & it was on to the CRICKETS!
  • £200 raised & it was time for a yummy LOCUST! 
  • £300 some BLENDED VOMIT FRUIT EXTRACT with water was drunk!
  • £400 she ate a CENTURY EGG (fermented egg)
  • £500 Lastly was FISH EYE
  • Extra money raised during the trial meant eating BRAINS.
  • She raised an amazing £760

2021

Mandy held an online fundraiser on Facebook & Twitter for her birthday. Everyone who donated any amount was entered in to a draw to win 1 of 2 £20 Amazon vouchers that we
could then email directly to the winner. This year totally blew us away as we raised an amazing £1,172.34

For those who shopped at Amazon you have donated £24.23. THANK YOU, every little
helps.

For those who shopped using PayPal
you have donated £78.75. THANK
YOU.

2022

Mandy again ran a birthday online
fundraiser. Everyone who donated was
entered in to a draw to win 1 of 2
£25 Amazon vouchers that we
could then email directly to the
winner. This year we were again amazed
by the kindness of people who
helped us raise over £1,000

For those who shopped at Amazon you have donated £59.35. THANK YOU

Payroll Giving is a simple and tax efficient way of donating to #charity! Donations are taken from your pre-tax pay so a £5 donation only costs a standard tax-payer £4.

In May we attended the annual PENDLE POWERFEST car show where we ran a tombola & sweet stall. Along with Mandy were 2 of the other trustees, Sue & Amanda. We raised over £150.

Mandy was able to share information online as to what it is like to live with PROS, which led to a kind donation to GoPI3Ks of over £500

In November we received a donation of £250 from
@MADLcharity: Making A Difference Locally after
our chairperson Mandy Tweeted about the work we
do supporting those living with PROS

2023

Mandy again ran a birthday online fundraiser.
Everyone who donated was entered in to a draw to win 1 of 2 £25 Amazon vouchers that we could then email directly to the winner. This year we were again amazed by the kindness of people who helped us raise over £1,000

For those who shopped at Amazon you donated £52.18 THANK YOU. Although this scheme has now ended we’re grateful for your support.

Thank you to those who choose to
support us when using PayPal. Your
kind gesture donated over £127 to
the charity.

One of the GoPI3Ks members Lucy Bridge who is a great support to the charity held a Go Fund Me fundraiser to raise money so that Lucy, GoPI3Ks & Dr M Polubothu could host a PROS Day at
Great Ormond Hospital, London to highlight PROS to as many doctors as we could. From GP’s to consultants to those working with PROS children, e.g teachers, social workers etc

Lucy raised an amazing £2111.00

We held a fundraiser on social media to help with the costs of the family weekend & the generosity of people we raised over £380 which was a big help.

In May we attended the annual PENDLE POWERFEST car show where we ran a tombola & sweet stall. Along with Mandy & Sue we had some fabulous volunteers, Vicky, Anne, Caz & Jackie who we couldn’t have done it without, so a HUGE thank you to them. We raised over £190

2024

Mandy again ran a birthday online  fundraiser.

Everyone who donated was entered in to a draw to win 1 of 2 £25 Amazon vouchers that we could then email directly to the winner.

This year we were again amazed by the kindness of people who helped us raise over £800

A huge thanks to Lucy Bridge who ran a fundraiser on Rare Disease Day raising an amazing £1,500

hand, write, ballpoint pen, paper, thank you, letter, letters, thank you very much, pen, thank you, thank you, thank you, thank you, thank you

To a donor who kindly donates £25 each month. Your support is truly appreciated.

Payroll Giving is a simple and tax efficient way of donating to #charity! Donations are taken from your pre-tax pay so a £5 donation only costs a standard tax-payer £4. For more information please see: Charitable Giving Fund

hand, write, ballpoint pen, paper, thank you, letter, letters, thank you very much, pen, thank you, thank you, thank you, thank you, thank you

To a donor who kindly donates £25 each month. Your support is truly appreciated.

Payroll Giving is a simple and tax efficient way of donating to #charity! Donations are taken from your pre-tax pay so a £5 donation only costs a standard tax-payer £4. For more information please see: Charitable Giving Fund

Thank you to those who choose to support us when using PayPal. Your kind gesture donated over £1,200 to the charity. If you would like a sign up to donate as you shop: PayPal Giving Fund

Adam Hockaday who’s daughter lives with PROS took on the challenge of completing the Brighton marathon in aid of GoPI3Ks.

Adam did such an amazing job & raised over £1,300 for us.

THANK YOU ADAM your support means so much

In April we attended a ghost hunt at Mill Street Barracks Cheshire where my friend Jayne Cobban-Hughes ran a ghostly evening with her team from: Blackgate paranormal. What a fun evening that was & over £300 was raised for us. Thank you Jayne & the team.

In May we attended the annual PENDLE POWERFEST car show where we ran a tombola & cake stall. Along with Mandy & Sue we had some fabulous volunteers, Vicky & Silva who we couldn’t have done it without, so a HUGE thank you to them. We raised over £145

In September, Jess who lives with PROS took on the challenge with her horse Blue to ride 50 miles in 8 weeks. She absolutely smashed her target through wind & rain & thankfully some sunny days to raise over £200. THANK YOU SO MUCH Jess, your support means a lot.

Also in September when Lucy Bridges’ daughter started school, Lucy raised awareness by sending a letter to the whole school explaining about  PROS. This led to some really positive feedback from parents and lots of kids have asked their parents questions and parents have been able to respond. In conjunction with this Lucy organised a raffle and raised fabulous amount of £339. THANK YOU LUCY

2025

Mandy (our chairperson) again ran a birthday online fundraiser.
Everyone who donated was entered in to a draw to win 1 of 2 £25
Amazon vouchers that we could then email directly to the winner.

This year as it was a big 50th birthday we were overwhelmed by
the kindness of people who helped us raise over £1,000

We are also very grateful to other supporters who were kind enough to make GoPI3Ks their charity
choice for their birthday Facebook fundraiser

Last year we had the pleasure of working with a team at PIPGen: PIPgen
on their PIPGenerating art project. As part of the event people were able
to donate to us & we received nearly £90

A minimalist thank you note with eucalyptus leaves, perfect for expressing gratitude.

CHARITABLE GIVING / PAYROLL GIVING

Payroll Giving is a simple and tax efficient way of donating to #charity!
Donations are taken from your pre-tax pay so a £5 donation only costs a
standard tax-payer £4.

PAYPAL GIVING FUND

Thank you to those who choose to support us when using PayPal. Your kind
gesture donated nearly £50 to the charity.

Individual donations

A huge THANK YOU goes to those who wanted to support us when they heard of the work we do to support those living with PROS. We received over £500

Thomas & friends fundraiser

Hi, I am Thomas. Me and my friend raised over £600 for GoPI3Ks at my
mum’s birthday party in under 4 hours. We put temporary tattoos on guests for a donation. And my hairdresser gave me a gift card for a wash and blow dry. I ran an auction for this an it raised £500 because my mum has crazy friends

Vicky’s Loch Ness Cycle Challenge

My good friend Vicky took part in a 66- mile bike ride around Loch Ness in
April. It was a challenging route which included a 4.8-mile-long hill right in the
middle of it! There was also a time limit on the ride as the roads are closed to
traffic for 5 hours and 38 minutes and re- opened after this time, which meant an
average speed of 13mph was required. She smashed it like we knew
she would raising over £850 for us.
THANK YOU SO MUCH VICKY

Susan’s Kilt walk for GoPI3Ks

Susan said “as some of you may know, my granddaughter was diagnosed with “PROS” “Through this trying time GOPI3KS supported Annabelle & her family greatly & they will continue to do so over the years”. “I would like to give something back as GOPI3KS is a small charity”

Annie’s knitted gnomes!

A supporter of the charity, Annie Boothman has been knitting gnomes to sell to raise money for GoPI3Ks.
So far she has raised a fab £35. THANK YOU ANNIE

Abigail and Davina’s Pride night

Earlier in the year my friends Abigail and Davina held a night of entertainment, selling pride related items and a raffle. With only two weeks of organising they hosted this event that raised an amazing £960 for us.

Thank you so much to you both for such a wonderful fundraising event.

Amelia’s Swimming Challenge

I’m raising £500 to support two amazing charities; GoPI3Ks and Great Ormond Street Hospital by completing a 5000m swimathon.

My name is Amelia and I am almost 10 years old and I was diagnosed with PIK3CA-related overgrowth spectrum (PROS) when I was just one years old. I have had over 40
appointments at GOSH since my diagnosis and I have a great team of consultants who help and monitor my health.

GoPI3Ks is a special charity that support me and my parents as living with a rare condition can be really hard sometimes. Amelia raised a fantastic £652

Linda’s Christmas Fayre Fundraiser

A huge thank you to Linda Robson who’s granddaughter has PROS.
She organised 2 Christmas fundraisers where she made homemade gifts for people to buy. They made over £200

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