Welcome to GoPI3Ks

We are a registered charity (1176289) based in the UK for patients and the families & friends of patients with a Segmental overgrowth in the PIK gene, known as PROS: (PIK3CA Related Overgrowth Spectrum).

PROS is an umbrella term used for a number of conditions, please  click on our learn more button for more information on Segmental Overgrowth Syndromes.

Our aim is to provide information, to offer support to PROS patients and their family and friends as well as to share experiences. Plus we are now in a position to offer financial grants to those living with PROS, for more information please email us at gopi3ks@yahoo.com


For my birthday this year I’m raising money for the charity I run: www.gopi3ks.com Like last year every person who donates will go in to a raffle where 2 LUCKY WINNERS can choose 1 of these 3 FABULOUS PRIZES. £20 ODEON CINEMA VOUCHER, £20 RESTAURANT CHOICE VOUCHER (UK only for the vouchers) or a 12 MONTH SUBSCRIPTION TO DIVA MAGAZINE. Thanks to my friend Laura Sexton for donating the subscription. Thanks to all my wonderful friends who last year raised an amazing £700! What can we raise this year? https://www.facebook.com/donate/2509577059315987/10158165718014319/


We hope to be attending the fabulous Trawden Show this year: http://www.trawdenshow.co.uk/visitor-information/ 

Once we have a date, why not come along & say HI, we will have a stall with lots of varied prizes to be won.  We will also be offering homemade cakes to purchase on the day.

Please see the link below for our first newsletter from 2014:

 newsletter December 2014 Issue 1_vp_2

Below is the newsletter from January 2016:

January 2016 Issue 2 – Copy

Below is the newsletter from December 2016:

December 2016 newsletter

Below is the latest newsletter from December 2017

gopi3ks newsletter 2017

Below is the latest newsletter from December 2018

GoPI3Ks newsletter December 2018

Below is the latest newsletter from December 2019

GoPI3Ks newsletter December 2019